for medical and social genetic aid projects «Life Genome»
About the Fund
Charity Fund Life Genome was established to provide support for genetic research to the families with suspected hereditary disease. Charity fund finances genetic study of the patient and also healthy relatives for gene carrier that causes disease.
have already received support
Our goal is to make efficient state-of-the-art genetic research available for children and adults in need, for those who seek for help now. Genetic technologies serve as an important tool in diagnosing and determining the root cause of the problem, which preserves lives and improves its quality for every family member regardless of their age and gender.
We make expensive technologies available today for those who seek for help.
Want to help
have already received support
The family was looking forward to the birth of their first child, but the girl was born seriously ill. Various medical examinations did not reveal the cause of the disease. The parents decided to have a second child, but the second girl also had a similar disease.
A healthy girl was born into a family. In the maternity hospital, the baby underwent neonatal screening, which revealed the presence of cystic fibrosis. However, a further study of the gene for cystic fibrosis did not confirm the diagnosis.
Various tests failed to establish the cause of the disease and the child’s life was at risk. Charity Fund Life Genome financed a comprehensive molecular genetic study of the child and his parents, which allowed to identify the cause of the boy's clinical condition.
Grandmothers (both from father’s and mother’s side) died at the age of 51 and 45 respectively from cancer. The doctors believed that the disease was hereditary.
Young parents have a child with multiple developmental defects (heart, limbs, central nervous system), the family is planning the birth of a second. Genetic studies were repeatedly carried out, which the family paid for on their own.
A family came from Moscow. There are two sons in the family. The older boy is healthy. The parents began to notice that the younger boy by the age of two has a delay in motor and speech development, negative behavioral patterns.
In a family of young healthy parents, in which one healthy baby was already growing up, they were waiting for the second child to appear. During pregnancy, the mother suffered several mild acute respiratory infections, and also accidentally (when she did not know about the pregnancy) was vaccinated against the flu.
In a family from a remote region of Siberia, a child was born with joint stiffness, muscle weakness, impaired breathing, swallowing, seizures, and developmental delay. An MRI examination of the brain revealed changes.
The employees of the Fund comprise a team of caring professionals whose goal is to make expensive genetic research affordable for children and adults in need. The scope of team’s work includes handling inquiries from citizens, interaction with healthcare institutions and genetic laboratories, organization of charity events and collection of donations, reporting, coordination of the volunteer movement and development of special support programs, among other things.
Strategic management of the Charity Fund Life Genome is carried out by the Supervisory Board which is responsible for general supervision of the implementation of the Fund's program and use of funds.
Among the members of the Supervisory Board are highly respected representatives of business, science community and healthcare industry.
By joining forces, we can bring hope for obtaining healthy life to many people suffering from severe diseases. You can easily support the fund for people with suspected hereditary disease: make a donation or take part in our promotional activities. We strongly encourage the participation in our promos of all caring people regardless of their age.